What patients have told us

Patient and carer insights are important for understanding the issues and priorites around self-management as perceived by people with health care needs and their carers.  Engaging patients and carers in the self-management debate can have a significant impact on how patients perceive and us.

People with long term conditions and their carers have told us that it is not always the condition that is the main problem, but the effect of the condition.  This section contains themed feedback from patients and carers which reflects what they need to manage their condition.  Please click on the links below to read the surveys and individual patient stories.

Surveys and insight reports

These insights provide a valid and widely applicable baseline to inform commisisoning decisions based on the patient/carer perspective.

Patient stories

Read these patient stories to find out what is important to people in managing their own care.